Jackson has needed his nebulizer through the night to help deal with his secretions. Come on little wee man please be OKfor Santa
Yearly Archives: 2017
We managed to escape hospital for few hours to go and see his sister at her dance presentation. He didn’t last very long but it was brilliant to get him out. Keep going Jax xx
Jax does the Great Escape
The decision has been made to postpone Jackson’s surgery. He was due back in theatre on Friday to have a new central line fitted. Jax is very very weak at the minute but the PICC line he has in seems to be doing its job. The longer that lasts, the […]
Surgery Postponed
They say sports personalities are “arrogant, up themselves, false, overpaid etc etc. This week we have been visited by Newcastle Falcons & Newcastle United Football Club and they have all been outstanding! Amazing lads and lasses. Ignore the B.S.. these have gave up their own time to visit us and […]
Jax gets a visit from Newcastle Falcons and NUFC !
Unfortunately another rough night for Jackson His heart rate is continuing to dip into the low 60’s. Dad was up with him all last night having to stimulate him to get his heart back up above 70’s. This is scary for us as normally the alarms are enough to jolt […]
Jax- heart rate is continuing to dip into the low ...
Wow we are totally overwhelmed by the orders we have got in the first 24hrs of the shop going live THANK YOU. and welcome to all the new members of #JaxArmy.
Shopping!!
They say a picture paints a thousand words…… Clearing out my phone I’ve come across some old photos of Jax. It absolutely breaks my heart to see the state of my baby. I wish we had answers, I wish we could change what’s happening to him. Watching him deteriorate in […]
A picture paints a thousand words
You can now order your “The Little Wee Man/#answersforjax” wristbands on line – just click on the Shop menu We’ve had to limit this to 5 per order to keep the shipping costs down initially but it is a start in helping to raise funds for getting items for Jackson […]
The Little Wee Man gets a shop !
Hi everyone I’m doing good. Thank you for all your well wishes love Jax xx
Doing well – thank you
Jax is back in theatre – getting his sepctic line out- this will be the 9th time this year !