Daily Archives: February 28, 2017


Jax asleep
Consultant been in and she agrees Jackson has a volume issue so we just have to go at his pace. At the minute while we can use his central line (into his heart) he will get his missing fluids via IVT. Once that goes when the dressing needs changing we […]

Jackson has a volume issue


The last day of February is the world’s rare disease day. Please share this or use a photo attached as your profile. Spread the word. Jax doesn’t fit into any box he is rare, unique and gorgeous. For more info…. https://globalgenes.org/world-rare-disease-day/

Rare Diseases Day