Daily Archives: April 24, 2017


well Jackson has had a bad day today he started off with a massive apneo went down to 46% but came back with masked oxygen a few blows in the mouth luckily no other intervention but we were close. then he has continued to not tolerate his feed AT ALL. […]

blended diet


ive not updated you for awhile because there is nothing to update we are stuck in groundhog day.. its deja vu but on a different week. Jackson isnt tolerating his feeds AGAIN he is in pain AGAIN his feed gets stopped AGAIN he then loses weight AGAIN gets dehydrated AGAIN […]

no updates