Monthly Archives: June 2017

This morning Jax did FANTASTIC with physio in the gym his walking is coming on amazing I am so proud. Then he had a port needle change that didn’t go well. on the second attempt he forgot to breathe and went grey 🙁 Then once he was settled he went […]

Jax did FANTASTIC with physio !

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So the consultants had their meeting (gastro & neuro, unfortunately respiratory couldn’t make it.) The outcome is that neuro & gastro want a second opinion on Jax from Great Ormond Street Hospital. GOSH have the equipment to carry out investigations that they can’t do up here. To get Jax to […]

MDT update

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We have a very flat Jax this morning. He did AMAZING at the gym yesterday so it could be he is just worn out or his feed mixture has gone from 25% milk to 50% milk his BP is also high and he had gone motley. Everyone is allowed a […]

Flat Jax this morning

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Unfortunately our baby gone downhill again. He can’t lift his head up let alone stand. He didn’t even respond to his favourite cleaner (He loves chasing the mop). He’s also retching blood again. His last 4 blood cultures have grown things so he’s had IV antibiotics for last 2 days. […]

Our baby gone downhill again

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We will be selling silicone charity wristbands for Jacksons fund ! These are available in 2 sizes (Adults and Youths) and 3 colours Black white or Blue. Adult wristbands are £2 each Youth wristbands are £1.50. show the world your in Jacksons Army helping him find answers, helping him get […]

Charity wristbands for Jacksons fund !

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Little Wee Man with his Ball image
So this morning Jax was nice and settled when I got him dressed I noticed his back was burnt where he has pooed (yes it has gone up his back). We went to the physio gym for Jax to practice walking on the parallel bars HE DID BRILLIANT then he […]

A day in the life of Jackson

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