23rd August 22:39 – This was visiting a friend today. Jackson’s feed had just started. 23rd August 23:29 – This is about hour after the paw patrol video he is in massive pain again because of his evil milk feed 25th August – Jacksons peg extension has snapped inside […]
Monthly Archives: August 2017
Jackson’s really enjoyed his home visits this last week he’s totally loving his sensory room and today he started playing with the therapy cat. It might only be for a few hours and he’s out of it most of the time but it’s a start #Happydays
Jackson visits home
Jax made it into the 100,000 Genome Project Newsletter ! As you can see, Jax’s list of symptoms include : Chest Recession, Stridors, Trachealmalacia, Bronchomalacia, Clonus and myocolonus, Dealyed developed by 5 months, Intolerance to cow’s milk protein, he can’t swallow, eczema, hayfever, apneoas, regularly stops breathing, Sensory Processing Disorder […]
Jackson in the 100,000 Genome Newsletter
So after a week of no enteral feed no pain no retching. We started Jax on a 18ml per hr jej feed he got to 18ml and started retching with blood in his slava 🙁. Feed was stopped now we are trying it gastric (into his tummy) see what happens […]
Back to retching
On Sunday Jax Jej came out – this is his feeding device that goes direct into his bowel and this is where he gets his feeds and the majority of his medicines. All milk feeds have been stopped (as there is no other way of giving him them) and he […]