Daily Archives: September 29, 2017


Jax at the Dentist
Jackson visited the Newcastle Upon Type Dental Hospital for a check up and to see about his teeth grinding. The staff were amazing I highly recommend them. Jax got a special tooth paste and foam free tooth brush to help with his secretions

Jax has a trip to the Dentist


Pyjama Fairies
Today we received Jackson’s theatre gown and pyjamas from the @pyjamafairies thank you so much. Jackson will use them on Monday for his replacement jej and Friday for his next theatre visit for a new central line. Thank you fairies xx http://wrappyjamafairies.co.uk/

Jax has a visit from the Pyjama Fairies !


Jackson has learnt how to do chin ups on the sink ! We’ve tried to barricade it so he can’t reach and this is what he thinks of that…..

Chin ups !



So after Jackson’s emptying studies on Wednesday he was due to have his jej replaced today. That got cancelled which means he’s had no feed since midnight Tuesday and he is doing Amazing! Sadly his jej will be back in on Monday 😣😣. I’ve included some vidoes of him today […]

Back to Normal Jax !