Monthly Archives: January 2018


We are very proud of Jax’s  big sister Erin, her story that has been published by SWAN UK. Erin is Jackson’s rock and their bond is fantastic. SWAN UK is a support network run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed […]

Erin and her story published on Swan UK – a ...





Last night Jax reminded us just how bad his sensory processing disorder (SPD) is, unfortunately his nurse went home sick (get better soon Nurse A xx) so we got a stand in nurse from a different ward who had never met Jackson before. She was lovely and went to do […]

Not the start to 2018 we had hoped for