A fantastic week !

No episodes, no retching, nothing! And most importantly NO FEED.

It’s obvious to all around us that his formula causes this. Hopefully doctors will agree this time and not try for a 22nd cycle of forcing feed into him.
We still haven’t had ‘official’ reports from his emptying studies but 4 days later we are still getting barium in his drainage bag so it’s definitely slow.
This week it’s a busy week :
Tomorrow we meet with plastics to find out if and when he needs further surgery to correct his hand.
He is having his jej replaced at some point (boooooooo) and
Friday he is back in theatre for another central line.
His consultant is due back tomorrow Yeah!
So Fingers crossed for another good week xxx