Happy bank holiday xx unfortunately jackson has had a bad turn. He is not tolerating any feed via stomach or bowel. We don’t know if it’s due to his blended diet or his startles (we have noisy neighbours). But his stomach or bowel aren’t doing anything. Anything that goes in is coming straight out. So all entral feed has been stopped. He is 20hrs PN then 4 hours additional fluid. He’s been really flat today he cant lift his head. So we are suctioning alot more because of his retching. Luckily his consultant came to see him so she’s aware. Tomorrow is a new day come on Jax xxx (and yes he does fall asleep cradling his suction yanker) lol x