Great Ormond Street Hospital Diary – Day 11

Another great day for Jackson. He’s still breath holding and going bradycardic and tachycardic but apart from that we managed to get him out today.

He managed a bus & The Official London Eye.who I have to say were FANTASTIC at accommodating him. We then had a lovely walk along the South Bank, popped in to see some friends and went for a bite to eat. Dare I say it… it has felt like a “normal” day.

The colour of Jax is draining, his new London blood is fading so he may need another blood transfusion and iron before his big investigation on Thursday