You wouldn’t think this little man was just off to theatre !

Update 12.15: he’s back on the ward just getting connected up for his AMD test this will run for the next 24 hrs

Jackson got connected and the test started, throughout the day he has been fantastic but we all knew it would reach a point.
Tonight his HR is dipping to the low 60s he is having weird jerky movements off his whole body.
He has gone blue 3 times tonight dipping to 61%, based on this the gastro consultant has stopped the test!
They have about 12 hrs worth of recordings not 24hrs as they wished but they don’t feel it’s safe to put jax through it.
At the minute Jax is in a wiped out sleep hopefully by stopping the test he will become more responsive. Neuro and cardio are coming to review him.