Jackson at home trial

We’ve got Jackson home for another ‘trial’ in his own bed.

Unfortunately stopover number 2 (on Tuesday night) went horrible wrong. Jackson woke up severely distressed and then had some breath holding episodes requiring intervention 😥.

He settled after a few hours and went back to sleep. the hardest thing for us is seeing how happy he is when he is back in his hospital room! its so sad that our boy treats that as his home… if he can manage better at home then discharge will be imminent so come on jax you can do this #SPDsucks! #scaredoflife #transitions