Consultant been in and she agrees Jackson has a volume issue so we just have to go at his pace. At the minute while we can use his central line (into his heart) he will get his missing fluids via IVT. Once that goes when the dressing needs changing we are knackered so hopefully it will last till then.

I really don’t want to go down the route of Jackson getting cannulated numerous times a day. I brought him out for some fresh air right into a busy corridor. So he went straight into a sensory sleep 🙁 come on baby boy xx you can do this xx