Jackson has decided to get his oxygen direct from the tube


So Jackson has decided to get his oxygen direct from the tube. He slept like this for ages. πŸ˜‚πŸ˜‚
His consultant is going to discuss with his dietician a new plan as everyone agrees he can’t tolerate more then 41ml per hr.
It looks like he will be in theatre again the beginning of next week for a replacement central line or a central port. Which one he gets will depend on his nutritional needs.
His hand has healed YEAH… Still need to work on the scarring and he is getting physio to use his thumb again.
We got out for a hour today where we met one of Jax supporters. A lovely lady stopped us to say hello. It’s little things like that which is why I do this blog. His story is getting out there it’s working. Thank you xx

Jax asleep with oxygen tube image