This morning Jax did FANTASTIC with physio in the gym his walking is coming on amazing I am so proud.

Then he had a port needle change that didn’t go well. on the second attempt he forgot to breathe and went grey 🙁

Then once he was settled he went into a deep sleep only to wake and stand on his feeding line into his jej which had now broke. We are managing to feed him with it taped! But that will need replacing ASAP hopefully just in radiography and not theatre xx