It’s here FRIDAY 13TH… surgery number 2 this week. He’s having a new jej so he can be fed!! We have had a good 3 weeks of no feed no retching no pain. But he needs some to protect his liver. So the feeding hell will start again….

Jax has been in theatre all morning – he went mental when we got in the room and spied the equipment. I hate that our baby recognises theatre 🙁.
His consultant is doing the procedure when she came for consent she confirmed that the gastric emptying study showed Jax has dismotility

Hi everyone I’m out of theatre back on the ward thank you for all your messages love jax