Jackson is back in theatre at Great Ormond Street Hospital, hopefully for the last time
A big thank you for the lovely writeup from Lucy Air Ambulance for Children who flew Jackson down to Great Ormond Street Hospital Jackson’s big step forward
Lucy Air Ambulance – Jackson’s big step forward
Today Jackson has said goodbye to Dad and big sister as they head back up home. Our transfer has been cancelled as they were not ready for us at the other end and Great Ormond Street Hospital would prefer it for him to stay here in case he relapsed. (We […]
Great Ormond Street Hospital Diary – Day 18
Today Jackson has been on really good form. We went for a walk and he went blue in Superdrug but apart from that little episode he’s been brilliant. The consultants here are liaising with RVI to make the final decision if the investigations will take place on Thursday in the […]
Great Ormond Street Hospital Diary – Day 14
Making progress…… So we heard today the gastro team at the RVI have said they want the investigations to continue so Jax will be in theatre first thing for catheter placement. We also got told by one of the Doctors here that a Doctor from the RVI gastro team will […]
Great Ormond Street Hospital Diary – Day 15
We went out for walk with jax and he’s doing great. He’s back to bouncing and flapping around now we just need to keep him well for tests this week !
Great Ormond Street Hospital Diary – Day 12
Unlucky for some… So today all of the consultants came in to talk to us. Because of how Jackson reacted to the last test, GOSH aren’t sure if it’s safe enough to carry on. They are speaking to the RVI for more info. The RVI have seen Jackson react like […]
Great Ormond Street Hospital Diary – Day 13
Another great day for Jackson. He’s still breath holding and going bradycardic and tachycardic but apart from that we managed to get him out today. He managed a bus & The Official London Eye.who I have to say were FANTASTIC at accommodating him. We then had a lovely walk along […]
Great Ormond Street Hospital Diary – Day 11
Jax continues to improve. He’s getting his cheekiness back and is also pulling big sister’s hair (which is definitely a sign things are getting better 😂). Today we have met with Neuro again and metabolic doctors to discuss further testing to see if they can help Jackson in anyway. Unfortunately […]
Great Ormond Street Hospital Diary – Day 9
Jackson continues to fight his infection and is definitely feeling better. His day started with a visit from Lucy Air Ambulance for Children. These are the people that arranged all of Jax’s transfers down here. It was so lovely to meet them and Erin and Jackson loved their bears – […]