I’ve not posted every day as I feel all I’m bringing to the page is doom & gloom. But I’ve had a few inboxes so here’s what is happening..
Jax has sadly started having seizures. We thought we had got away with them because his eeg come back normal. If he carries on having them he won’t be able to go to theatre Monday for his new central line which he needs because his mid line has stopped bleeding back.

We are waiting for Neuro to come and hopefully tell us some good news about the seizures been temporary or something like that. He is continuing to been borderline spiking a temp (37.5 – 37.9) and he is flat barely sitting up.

But he smiles…. Because he is awesome, so as hard as it is, if he can smile so can we xx